In more than 90% of cases of neonate deaths, terminal comfort care was provided in a Neonatal Intensive Care Unit (NICU) (Soni et al., 2011). Palliative care teams are increasing, but not enough organizations have embraced the need for better palliative care guidelines. Nor do many organizations know when, how, or if palliative care should even be introduced. These events lead to comfort care measures being underutilized in the NICU for most newborn infants with life-limiting and life-threatening conditions. Neonatal palliative care is discussed more than in years past, but little research has been dedicated to how early palliative care can improve comfort and quality of life while in the inpatient hospital setting. Keywords you will find throughout this benchmark study are neonatal palliative care, neonatal quality of life, palliative care nursing, parental stress in end-of-life decision-making, provider preferences, and perceptions of palliative care.

Date of publication

Spring 4-16-2023

Document Type

MSN Capstone Project



Persistent identifier




Included in

Nursing Commons